What is TRAIN?

TRAIN is a remote intervention study for children with TSC using the JASPER approach, developed by Dr. Connie Kasari at UCLA.

We are studying the effects of early behavioral intervention on developmental outcomes in infants and toddlers with TSC. We focus on social-communication skills, as these are tightly linked to the development of ASD. The overarching goal of our research is to improve outcomes in infants with TSC by conducting rigorous, innovative research in treatment, using both brain and behavioral measures to study the effects of treatment.

How to Participate in TRAIN

None of this work would be possible without the generous involvement of the families who participate in our study. We are currently recruiting infants and toddlers with TSC to participant in our study. If you have a child between the ages of 12-36 months with a clinical diagnosis of TSC, you may be eligible to participate in this study. If your child is not yet 12 months, you may still begin the enrollment process. If your child is older than 36 months, you may be eligible for a single time-point assessment. In addition, caregivers must be available twice weekly for remote video conference calls. Please contact our study coordinators to learn more!

TRAIN Informational Video:

Study Involvement

After the the initial remote visit, participates are split into Group 1 and Group 2, where the intervention is done remotely for 12 weeks.

Group 1

• Coached Intervention

• 30 minutes meetings, 2x per week