News
PRELIMINARY RESULTS of EEG DATA FOR JETS
05/2023
Characterizing the Resting State in Toddlers with Tuberous Sclerosis Complex
In this poster, presented at the International Society for Autism Research Annual Meeting (INSAR 2023), we discussed the Visual Evoked Potential (VEP) of the JETS children’s data with some data collected from children with TSC back around 2011 at UCLA and BCH. The JETS children helped us increase our sample size so that we had enough data to draw conclusions.
PAPER ON JETS Pilot Behavioral Intervention Study
04/2020
Improving Developmental Abilities in Infants With Tuberous Sclerosis Complex
Abstract:
Tuberous sclerosis complex (TSC) is a rare genetic syndrome that confers risk for neurodevelopmental disorders, including autism spectrum disorder and intellectual disability. Delays in social communication and early cognitive abilities are observable as early as 9 months of age in children with TSC; however, there have been no studies of early behavioral intervention in TSC. We conducted a pilot study of an evidence-based, parent-mediated behavioral intervention focused on improving early social communication and play skills in 5 children with TSC (aged 1–3 years).
Jets makes an appearance on the news
02/11/2020
AgDay News report on Jets
On February 11th of 2020, AgDay News released a report focusing on the Jets study. More specifically, they highlighted the impacts of Jasper on a young patient and his family’s life. The parents discussed the positive aspects of the method, including remote access to care and the familiarity involved with the design of the Jets study; “the remote sessions are really the only reason we were able to participate in the program. we could do it on our schedule. we could do it in a space that he was familiar with, with his toys”. Parents are able to apply the techniques taught by trained professionals in a comfortable environment without constantly carrying a heavy burden of travel.
Dr Jeste, one of the principle investigators of the study, also comments on the importance of early intervention; “scientists found early signs of autism in this group of infants who, until now, would never have received crucial early intervention; "the earlier you can intervene, the earlier you can enrich that environment, the more likely you are to actually exact change in brain development".
Watch the full report for details by clicking below!
New Article by shafali spurling jeste
03/03/2020
Telehealth May Enable Remote Participation in Autism Trials
This article written by Dr Jeste discusses the importance of access to remote participation and highlights the positive aspects of increasing range of patient care through technology. This has been especially true to the Jets study, which Dr Jeste presents throughout the text as an important example of a case where the study design involved remote access.
Read the full article for details on how technology helped increase the geographical range of care for Jets and how this was shaped by the Jasper method.